This week was the start of my new regime or block.
This means that this week I will have four days of chemotherapy at Norfolk and Norwich.
Dad took me in on Tuesday and we were in for around twelve hours, not so bad, but you don't have to put up with Dad's terrible jokes...at least I thrashed him on the PS2! ;)
School has been good this week as I have been able to concentrate as well as actually finish my work during class. Steroids are good for something then!
I went to watch my dad play his second game of Rugby this season against Dereham. I'm sure he tried hard, but Watton got totally spanked, I think that was more to do with Dereham being a huge pile of cheaters.....!
Joss's Mum Peny came over for dinner on Saturday and Mum made an awesome Italian puff pastry thing, really tasty.
On Sunday Mum and Dad took us swimming in Thetford, which was awesome because I had had a 1" needle stuck in me all week and this is the first time in weeks that I have been able to shower and enjoy a swim.
Mum treated us all to lunch at The Hungry Horse and then we spent the rest of the day spazzed out at home.
See ya soon.
Hello all,
A fairly eventful week last week as my chest opened up where my Port Catheter had been stitched in!
Soon had it all stitched back together again though.
Looking forward to school starting next week as I am bored to tears.
I should be allowed to do half days as my regime has changed again which means that I will need chemo on the ward on a Tuesday, which takes all day and then I need more chemo on a Wed/Thurs/Friday.
Mum and Dad took me and Dylan to Duxford to the Imperial War Museum to see the Battle of Britain 70th Anniversary Airshow.
I saw some amazing aircraft and would love to be able to fly when I am older.
It was a bit of a long day but it was loads of fun.
I am off to school on Monday and I can't wait to see joss and all my other friends.
On Tuesday I had my Hickman line replaced with something called a PortaCatheter or Port for short.
My port is under my skin on my chest which means that eventually I will be allowed to go swimming, which is brilliant.
My steroids are being ramped down this week and I will soon be off them, which means I will start to return to a normal weight, which is cool because I am getting a bit round.
Not much else going on this week, except that Mum and Dad are really trying hard to get a new house for us all to move into. We just need a bit more space and a garden would be nice.
Oh I went round to my best mate Joss' house last night and his Mum, Penny, cooked us all a huge bowl of spaghetti with garlic bread which was fantastic. I like spending time round at Joss' as he always makes me laugh loads.
See you next weekend all.
Well it's been an eventful few days.
I have found out that Angels really exist, in the form of Mr Andy Blake and Mr John Aspinall.
These two generous men have bought me a brand new wheelchair from a compay in Holland. How kind is that. I have never even met either of them.
Mum and Dad are on a mission to get us all moved into a bigger house because our little terrace place isn't quite big enough. The main reason being that I can't walk as well as I could before chemo and I am finding it very difficult to walk up and down stairs. So some time in the future I am going to need a downstairs bedroom and a few aids around the house to help me do stuff for myself.
Dad has left his job to help with the extra work and Mum is busy getting stuff sorted for me with Doctors and Nurses and returning to School in September.
Went in for my check up on Friday and when the nurse flushed my Hickman line it leaked everywhere. A bit weird but I wasn't worried, until a nurse said that she had never seen that before!
After an x-ray confirmed that my line was coming out I had to wait and see if I was going to have to have another stay in hospita for surgery to replace the line.
Poor old Dad had said his goodbyes and was taking Dylan home when Mum rang him to say that I would be able to come home today and would be going into surgery next Tuesday. Luckily he was still in the car park so no dramas.
I am having somethng called a Port put into mychest next week.
This is an implant put under my skin which is a much better solution because it means that I can at least o swimming.
We all went to Pedros in Norwich on Saturday and had an awesome Mexican meal. I had a huuuuuuuuuuuuuuuuuuuge pile of tortillas with sizzling beef. An adult portion with an extra tortilla and I managed pudding. Bearing in mind that this was less than three hours after destroying an epic bowl of pasta.
Dad drank hot sauce and we all wore Sombreros which was a giggle.
When we finished we all went for a walk into Chapelfield mall. My favourite shop was the Apple store, Dad said that it just served to remind him of exactly how much cool stuff that he DOES NOT have. I think he fell in love with the big iMacs.
We came home and watched Anchorman, it never gets old!
See y'all next week.
Peace
I spiked a bit of a temperature today so Mum rang the Norfolk and Norwich hospital. They wanted me to go in just in case.
All was well and in future I will only need to call in when my temperature goes above 38 degrees.
I am going to do weekly blogs from now on because it is a bit of a drag having to sit down and write about nothing at all.
See you all in a week.
Even less to report today.
Getting used to having my freedom from hospital was a mistake as I am back in today with Dad for one of my two weekly check ups.
The Doc came back with my Bone Marrow biopsy results and was shocked to find out just how well I am doing.
My Leukaemic cell count is now below 6% which, considering 25% is great, is pretty astounding.
I can't wait for my MRD (Minimum Residual Disease) results.
Dad bought me a MacDonalds on the way home and we ate it in a layby...classy.
See ya.
Not much to report guys.
Took a drive up to the Rugby pitch today to say hi to my team mates and coaches.
Everyone is surprised to see how well I am doing. They are all looking forward to seeing me back on the pitch.
Mum took me round to Joss' house and his Mum Penny made me a ruck of pasta and meatballs.
LUSH.
Dad came back with Joss fresh from training and we sat around chatting for a bit.
